Welcome to Knowmi.
The Dysautonomia Hive
Knowmi is a Hive built specifically for people with Dysautonomia. We first came to even learn of this diagnosis from a few webes who helped us throw our Sweet Sickteens Party in November. The number of people we met who were diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) began to grow, so we listened. A big issue for people diagnosed with Dysautonomia is actually getting a diagnosis
It can take years to diagnose. The time spent not having answers can be emotionally draining. Often times, a diagnosis actually provides a huge sigh of relief.
The Name Knowmi
After hearing the stories and kicking around some ideas with these webes, we landed on the name Knowmi. The biggest inspiration is due to the fact that Dysautonomia is an invisible disease. So people in the community don't get the support or often times even the respect that they deserve. So Knowmi is a call to action that says... "before you pass judgement or doubt me, take the time to Knowmi".
Knowmi is one of the fastest growing Hives and it has tons of truly awesome webes.